This is a page where I'll keep track of my current illnesses/infections etc and also keep a record of how my lung function and weight are doing! For anyone who's interested that is!
So those are my current 'issues'. I think most of them are self explanatory apart from pseudomonas, which is basically a bug that I grow constantly. If your not familiar with CF, nearly every person with it grows a certain bug all of the time. There are a couple of different bugs that are most common in CF patients and it's because of these different constant infections we are not supposed to mix with other people who also have CF.
My current lung function (fev1) is 49%. I'm disappointed with it because for months and months I'd managed to keep it in the low 50's. The highest being 55% and usually averaging at 52%. It's not a huge drop and I'm sure I can get it back but when you work hard to improve/maintain your lung function and it drops anyway, it's a little disheartening.
My weight currently stands at 48.3kg. I'm trying to gain weight to weigh 50kg though!
I have a hospital appointment at least every 6 weeks to get my portacath flushed (Click the link if you want to learn what one is and does!) So I will update this page every time I go.
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